Tuesday, May 10, 2011

World Lupus Day

Today is world lupus day! Please wear purple or orange to support someone you know that has lupus. I wore purple today :) Here is a World Lupus Day fact: Lupus is a leading cause of kidney disease, stroke and premature cardiovascular disease in young women. Spread the word and help us raise awareness!
Here is a picture of my rashes from lupus (this is when I was going through a really bad flare)

World Lupus Day Fact: (I did not know the number was this high!) Approximately two-thirds of people with lupus will develop some type of skin complication. This often is in the form of a rash or sores, most of which will appear on sun-exposed areas, such as face, ears, neck, arms, and legs.

Here is another fact: Lupus can be expensive to manage and live with. A recent study found that the average annual cost to provide healthcare for a person with lupus was $12,643, and was nearly $21,000 when lost productivity on the job due to illness is included (source: LFA)

World Lupus Day Fact: Lupus is one of America's least recognized major diseases. While lupus is widespread, awareness and accurate knowledge about it is lacking. Let's change this!

So I am on a full treatment with steroids since I am experiencing a lupus flare. My rhuemy gave me a higher dose of steroids. I thought that I could hide from steroids. It was just in my dreams. I am so tired of taking pills every morning and night. I know that if I don't take them there will be consequences. I am hoping that I don't gain additional weight from the steroids. I am still trying to lose the weight gain from last time. The cycle never ends. On top of this my Doctor informs me that I may have kidney damage and that I need to get tests redone this Friday. If this is the case, she will have to change my medication regiment. I just want a break. I am so tired from all the doctor's appointment, blood tests, medications, fatigue.

I have to admit that within a day of taking the steroids my fatigue and throat soreness has improve tremendously. This is my cross to bare and I gladly accept it. I just hope that I may be able to help those less fortunate than I. Help me spread awareness about lupus! For more information about Lupus please visit the lupus foundation of america (lupus.org).

xoxo,
Kat

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